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Anatomy of an Epidemic

5 min read

This is a story about the rise and rise of mental illness...

Dib Dib Dib

I used to be a Sea Scout. The motto of the Scouts is "Be Prepared".

When I suspected that I was becoming mentally unwell, I read every book, website, academic paper and journal that I could find that I felt related to my mental health and its potential treatment. I educated myself.

I'm an educated patient. Because I'm an educated patient, I avoided being medicated with a Selective Serotonin Re-uptake Inhibitor (SSRI) which would have caused greater mood instability than I was already suffering with.

SSRIs are also linked to emotional blunting and the destruction of the sex lives and relationships of many couples. My relationship was already on the rocks, hence going to the doctor to see if there were some magic beans or a silver bullet, that could cure my ills.

Fundamentally, I believe that some mental health issues are risk not destiny. There don't seem to be any genes that are clearly faulty in individuals who suffer from Unipolar Depression and Bipolar Disorder. They are complex spectrum disorders. Some people are really dysfunctional when they are unwell, and others find ways of coping, sometimes to the point that people around them don't even know they are suffering.

However, out of desperation, I have tried the following medications, prescribed to me:

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Mirtazepine

This was well tolerated (no nasty side effects that made me want to stop taking it). It certainly seemed to reduce my stress levels and get some sleep. I think I might have rebounded though and started to go hypomanic fairly quickly.

Quetiapine

Unless you like weight gain, constipation, dry mouth and feeling like a drugged zombie for the few hours that you are awake, before your next dose knocks you out and you start the whole miserable 24 hour cycle all over again... I can't say this medication gives much quality of life beyond dribbling at daytime TV.

Aripiprazole

This is useful to see if your head is held straight. If your head is leaning to the left, then you will dribble out of the left side of your mouth. If your head is leaning to the right, then you will dribble out of the right side of your mouth. If you are holding your head perfectly straight, then you will dribble out of both sides of your mouth.

Lithium

This is hardcore. You need to have regular blood tests. It will shorten your life. Avoid if you can tolerate other meds or manage without.

Sodium Valproate & Depakote

Do you plan on working again? In an office? 9 to 5? Not really compatible with going back to work full time. If you're not completely manic (psychotic) then best avoided.

Lamotrogine

Just takes so damn long to get up to a therapeutic dose, you go through another hypomanic episode, decide that you're fine, and then stop taking your medication anyway. It's pretty subtle. Apparently it improves REM sleep. I dream a lot anyway. My sleep quality is more a function of good sleep hygiene.

Olanzapine

Fast acting. Good to calm you down if you're having an unmanageable moment. Makes you sleepy though... couldn't really work 9 to 5 on it.

Bupropion

Fast acting. Incredible antidepressant. It did give me a panic attack once though. Also stokes my hypomania pretty bad. Although it's a nicotinergic agonist, it actually shares many characteristics of stimulants like caffeine and amphetamine. Makes you pretty horny. Helps you quit smoking too (I don't smoke though).

Diazepam

Mother's little helpers (Valium). This powerful long-acting GABA agonist is an amazing anxiolytic. You could literally stand in the middle of a highway and not give a sh1t about the cars whizzing past you at 70mph. Super addictive. Horrible to taper off.

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Fundamentally, do any of these medications work? Well, I can vouch for Bupropion, Olanzapine, Mirtazepine and Diazepam for their short term efficacy. However, the body soon gets used to the effects and builds tolerance, which means you forever need to increase the dose to get the same therapeutic effect... welcome to homestasis, b1tches!

In my anecdotal experience, it's better to tough out the storm and not mess with the ridiculously complex organ that is a brain. When the psychopharmacologists imagined how Prozac (Fluoxetine) was having its antidepressant effect they expected to see higher serotonin levels in spinal fluids. They told the world that depressed people had "low serotonin". They just guessed and they guessed wrong.

Type I Bi-Polar Disorder was also known as Manic Depression. This is a serious illness that requires serious treatment. It's not my place to comment on whether medication plays a part in that. I'm no expert on Type I BPD.

Type II Bipolar means that you have hypomanic episodes, not fully blown mania. That means risk taking, spending money, hypersexuality, racing thoughts and pressured speech... amongst other symptoms, such as reduced need for sleep & food, and intolerance of slow-witted fools.

I'm Type II. I think it's a very important distinction. If I can control my mood disorder with good diet, good routine, good sleep and abstinence from alcohol & drugs (including prescribed drugs) then my brain has the best possible chance of finding homeostasis.

If I can remove unnecessary stress in my life, caused by complete ass-hats, and I'm empowered to just get the f**k on with my life, then my symptoms will abate. It's as simple as that.

What's the White Stuff?

This was the first time that Frankie had ever seen snow. His brain adapted to the change in environment (December 2010)

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Compassion Fatigue

6 min read

This is a story about manipulation...

Art Imitates Life

My ex told her side of the story so much that our friends got sick of it. She then moved onto my parents. Sadly, my father was taken in by it.

Damsel in distress? I really think not. She spent a huge amount of time cultivating self-pity and a warped story that attempted to completely exonerate herself of any responsibility for our destructive relationship. I went quiet. I was slowly dying. I was self-harming and suicidal. Meanwhile, she vociferously attempted to turn friends and family against me. It didn't really work, as most people are mature enough to listen to both sides of the story before judging.

I certainly admit to my equal responsibility in an unhealthy co-dependent relationship based on hate sex. But I was the 'weaker' in this relationship, and I was beaten into submission. I think my friend Wiktor accurately summed up our marriage with the following image.

I'm on the little horse

I should have walked away. I tried to walk away very early in our relationship, when it became clear to me that she wasn't ready for a committed relationship. I tried breaking it off loads of occasions, but she kept begging forgiveness for things like cheating, and I kept forgiving her. Fundamentally, I loved her and she didn't seem to love me.

That was a life lesson I couldn't really seem to learn, because she isolated me from my friends, from the activities that I loved and even from my GP and my family. The conflict of interest was appalling. I literally ended up with almost nobody fighting my corner. She cultivated such a convincing 'woe is me' story of her own suffering.

I was suffering in silence.

However, I'm a very forgiving person. She vindictively destroyed me, and I forgive her.

I'm struggling to forgive my parents. They should remember that it was me who eventually reached out to both sets of parents and got them to negotiate my release from captivity, and allow my life to be spared. I found her parents to be extremely supportive, understanding and kind. It's really upsetting how my own were so twisted by her manipulative and one-sided bullsh1t.

I also have a problem with the way that my GP acted. She took my wife on as a patient - which I believe was an unprofessional conflict of interest - and started to see my ex on a very regular basis, and began to become compromised, sympathetic to the patient who she saw more and more of. I honestly believe that my GP was convinced by my ex to act in a manner that was by no means in my best interests.

I have evidence for this. When it became clear that I had few human allies, I turned to technology. I installed a keylogger on my spare laptop, which I left in my house. When my ex eventually subdued me into being taken away by my gullible and manipulated idiot father, I was able to see what was typed on the keyboard of that laptop.

My horrible ex immediately joined a dating website and started messaging men. Supposedly she justified conspiring with my father and GP for my safety, health and wellbeing. In actual fact she showed her true colours straight away. The front door had barely closed behind me.

This 'butter wouldn't melt in my mouth' fake image of a person had her mask torn down. At first, I didn't even resort to looking at the keyboard transcripts. I just had great intuition that something was wrong. Naturally she played the "he's just paranoid... mentally ill" card. She bare-faced lied to the Crisis Teams in Bournemouth and Oxford when confronted by them about my concerns that she was not loving, supportive and faithful.

When I showed her the evidence, she backtracked with remarkable speed and started acting with some human decency. Foolishly, I forgave quickly. I married her. In sickness and in health and all that. I bought in to all that love and marriage vows crap. Strangely, I still do.

Darkness is Coming

I don't think the end justifies the means. I wish I hadn't had to resort to snooping on the use of my own laptop (which is completely legal... it was my property, running my login account) in order to retain my own sanity. Can't people just be honest? Moral?

One of the moments that I clung to when my character was being assassinated, was when my ex recounted a tale of her trying to elicit yet more sympathy from our friends (I was not present, naturally). She was outraged that they were so dismissive of yet another here we go again tear-jerking tale of woe is me and pity party for the biggest martyr I have ever had the misfortune to meet, let alone date and foolishly marry.

Yes, fundamentally, this is a story of me growing up. This is a story of me finding out that relationships can be abusive, with cheating, lies, subterfuge and people are even prepared to take a life to perpetuate their disgustingly twisted image of self-righteous perfection. Whiter than white. Ha! I think not.

I accept now that I played my part in this. I should have taken responsibility for the safety of my own life much earlier, but so much of my support network was perverted by this manipulative character. Many of my friends went quiet, reserving judgement. They didn't reject me as a friend, but our relationship went cold.

I really hope she's OK. I don't think she's a bad person. I actually don't think anybody is 'bad' per se, Instead, we are all animals that respond to stimuli, to our environment, to factors outside of our control. I tried my best to make it work - that's what my parents taught me to do - but I didn't know how to walk away.

I didn't know how to walk away and it nearly killed me.

I got to keep our cat, but nothing else. My 'half' has been spent on putting this heartbroken chap back together again. I'm off to hospital again now. Hopefully I'm going to have an echocardiogram soon and see how bad the damage is.

Victim of Divorce

This poor animal was the victim of a horrible divorce. Frankie the cat didn't have a great time either (October 2014)

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The Passive-Aggressive Pedantic Pacifist

6 min read

This is a story about being patronised...

Mad Frankie

This is my cat, Frankie. He was the kitten that nobody else picked. He's the most loving cat you could ever hope to meet. He loves humans. He thinks he's a little doggy, and follows you around and licks your face and stuff.

I think that I provide a nurturing and loving home for people and animals. I don't have a lot of evidence for this, but my friends used to love coming to my house, before it was sold, and Frankie used to call it home, and be a happy well-adjusted kitty there.

I'm going to switch this blog from telling you about me, and tell you the story of two Franks. First, there is Frankie my cat. Second, there is Frank: my homeless friend from Primrose Hill. I promised Frank that I would tell his story, and in telling Frank's story, I inadvertantly became entwined in it.

Climbing the Hill

This is me climbing the hill, where I met Frank. I had no idea I was going to meet him. I was just taking photographs of London's skyline at daybreak. I sat down to rest on a park bench, struck up a conversation with a stranger, and our story began.

Frank's needs were not hard to understand, and seemingly not hard to address. As a firm believer in direct action, I was galvanized into a blur of activity. Who was I trying to save, him or me? Who cares... nobody else was there for Frank. Were you there for Frank? No. A lot of people had let him down. I had the time and the means to be able to try and help him.

Try is the operative word here. I'm going to try and not spoil the ending - which is going to be easy because we are writing the future as we live it - but I should let you know that this is no fairytale. I'm certainly not the knight in shining armour here. Despite my initial patriarchal attitude, it was me who learned from Frank, not vice-versa. He ended up helping me more than anybody could surely have predicted. I will leave it up to you, dear reader, to judge (with your super judgey-judgey face you reserve especially for people like me... whatever box that is you've tried to put me in).

So, what did I do? Well, we had a normal human conversation. Who knew that this is how human relationships are formed, and bonding and empathy can occur when we do such a thing. This so-called 'human connection' seemed to somehow transfer some understanding of Frank's fears and needs, into my brainbox, whereupon I somehow naïvely imagined that with whatever surplus I had, I might be able to help with some of his basic needs.

I defend thinking that I could help. You can't just throw money at the problem, but what have YOU tried yourself? Sure you read in a newspaper that we spend X on dealing with problem Y, and you think "that sounds like a lot of money" but really is it? How much direct support actually reaches people on the streets?

We absolutely can not criticise those who are trying to help, and take it from me, there really are not enough resources (shelter, food, volunteers, money for full-time workers and the real estate that is needed) to go around. This might sound anecdotal, but just use your eyes. Do you think people choose to sleep rough on the street? Are you stupid?

View from Primrose Hill

While you're digesting the fact that I just insulted your intelligence for being so prejudiced about the homeless, here's a photo of the view that Frank and I were enjoying on our park bench. Seems like a pretty sweet life, huh? Imagine waking up to this view every morning.

Have you noticed that it's not sunny every day? Have you considered that it rains a lot in the UK? Are you aware that it's pretty cold for most of the year, especially at night? Have you thought how you would stay warm & dry, if you had to sleep on the street year-round? How would you keep your clothes and sleeping gear from getting sodden with rain and dew? How would you stop your stuff from being stolen? Have you thought how much of your life you take for granted?

Is this too challenging? I know that it is, but I don't really care if you want to bury your head in the sand. I don't actually care if you switch off, disengage. I'm not writing this for you. I'm writing this for me & Frank. Maybe I'm just writing it for me, but it's still about Frank and it's still true. Try and dismiss me, try and dismiss this... go on!

JPMorgan Chase & Co investment bank employee and home owner tries to help homeless guy... coincidentally becomes homeless himself and follows in the footsteps of Frank. This is the true story I'm going to tell you.

God Bless the Met

I asked a member of Her Majesty's Constabulary (a Metropolitan Police Officer) to be a witness to me fulfilling the first of Frank's needs, right there and then, on the spot. Frank did not have a mobile phone, as he had been mugged. Without a means of contact, the Safer Streets team have very little way of finding people, except if they are sleeping somewhere obvious where they are preyed upon by muggers... Catch 22. I gave Frank my iPhone, and had a passing Policewoman witness the giving of this gift, in case he was ever accused of theft.

This was just the beginning of a journey that entangled the tale of Frank with mine, as we travelled on a similar voyage, through the same social ecosystem and his story became our story.

I took photos, and made notes throughout, but you have to believe me when I say that nobody would choose to go through what Frank and me went through. Nobody could plan for it. Nobody would want to experience it. Nobody should have to go through it, and I plan to share our journey, in the hope that people can empathise, rather than dismiss.

If you think "I've heard it all before" please share any links to those stories in the comments section below. Don't you think that the people who fall between the cracks should have their stories told? I do.

Fair Verona

From high up, we see just how far we can fall (October 2013)

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Large Enterprise is Going to Fail

5 min read

This is a story of a career spent in anonymity as a small cog in a big machine...

White Van Man

Any entrepreneur will tell you that overnight success takes many days, weeks, months, years or lifetimes. I can tell you exactly how long some of my successes took to build, and what the cost was: in terms of personal sacrifice.

Let's talk about my first startup, Bournesoft. I had needed to quit my job due to ill health, and as I recovered from the depression that followed, in July 2008, I taught myself to program games for the iPhone. I had 3 number one hits in the Apple App Store, in late August and early September.

The price I paid for this, was mood instability, which had been kept in check by the routine of office hours. With only a limited window of opportunity to make big cash in the App Store before every Indie Dev saw the opportunity, and then the big corporates moved in. I worked 18 hour days, and paid with my relationship with my partner, family, friends.

I also paid with my love of programming. I hated programming after having to learn Objective-C and the Apple platform under such pressure, which I put on myself. It was supposed to be a fun and confidence building excercise, that I had set for myself, having had an abrupt halt to a successful 11 year career as a software developer.

And so my next startup - www.bournemouthelectrician.co.uk - required significant retraining, but gave me the opportunity to work with my hands in a non-corporate environment, which I decided were my two priorities at the time. Unsurprisingly, there is not really an established training route for wealthy and successful IT professionals and Mobile App Indie Devs, into the building trade.

Undetterred, I incorporated a company (Bournemouth Technology Ltd) funded it myself with a director's loan, signed up for the training courses and got myself an IT contract to "fill the time" and keep the cashflow positive. As soon as I had passed the 17th Edition of the Wiring Regulations, C&G Periodic Inspection & Testing exams and had been inspected by the NICEIC, I bought a van and started trading.

In terms of sacrifice, I invested about 30% of what my lowest earning App had returned me. I also gave up an IT contract that was worth "a lot of money". But I hated programming and working in an office, remember, so I didn't view it as any kind of sacrifice at the time.

Until you have stood in a puddle of water in your customer's kitchen, when you have burst the cold water pipe into the house, or had to find the emergency cutoff as fast as you can when you have drilled through a gas pipe... you do not appreciate your desk, your swivel chair, your computer screen and your photocopier.

Anybody who says "stud finder" has not done any building work on older houses, which are full of the DIY-enthusiast's bodge-jobs, which are a daily risk to the life and livelihood of those in the building trade, who have to lift your horrible laminate flooring, crawl through your fibreglass filled loft, drill through your crumbling brickwork, and discover the creative plumbing you have plastered into your walls. "Why the f**k did they do it like that?" you find yourself asking far too many times. There is never a good answer. Regulations and professional standards exist for good reason.

When I was up to my elbows crawling around in shredded newspaper (creative insulation) dodging the exposed 230v A.C. live terminals of junction boxes that didn't have their lids any more, I got a phonecall asking if could I do a 2 week IT contract that would pay the same as rewiring two whole houses. I realised that I had finally learnt the value of the career I had left behind.

I managed to clear 2 weeks in my full diary of customer's jobs, but I avoided the unpleasant job that I really needed to grasp the nettle of. The right thing to do would have to been phone and cancel those jobs completely. Instead, I was exhausted from building my business from nothing to being a profitable company, and the shame of failing my customers drove me into a second lengthy depression. I did not fail gracefully. I don't feel too bad, because many members of the public I met tried to take advantage of hard-working and skillful tradesmen.

So, I started to retrace my steps. As my depression lifted, I built another Mobile Apps startup. This time selling to enterprise. I drove to one of the UK's largest insurers in my electrician's van, for a sales meeting. It started as Roam Solutions, and then became mEpublish.com and eventually, after the springboard(); TechStars program in Cambridge, it finally became hubflow.com.

Pushing myself so hard took me to the limits of human survival, costing me countless friends, my wife, all my money, my house, my boat, my cars, my hot tub, my summer house, all my tools of the trade. I would gladly pay double that, because it led me home, to London, reconnected me with my friends, and reignited my desire to continue living, liberated from fear of losing material possesions and unhealty relationships.

Camden Roundhouse

I'm the one taking the photograph. Camden Town, London, UK (October 2013)

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Platform 9.75

3 min read

This is a story of personal development, mistakes and unanswerable questions...

King's Cross School of Physics

I wrote something on the platform of King's Cross, doing the minimum necessary research, all from my smartphone. It wasn't me being smart, or my phone, but the programmers, engineers, physicists, philosophers and authors of all the content, who selflessly published into the public domain, via the Internet, which enabled me to do this.

Of course, there had to be a seed too. That seed was Oxford, and the academic sons & daughters who attended state comprehensive during my childhood, including Ben Werdmüller (CEO of Known, where you are reading this post) who taught me how to program a computer and not just use it for consuming video games. Technology then became both my means of consumption for literature (e.g. Cornell University's ArXiv library) but also low-fi tech, such as the Microfiche film I used to view the first photographs of the Middle East, at St Anthony's College, Oxford Univesity.

Ben's father, Oscar, was at St. Anthony's, with my mother, Gillian. This connection has serendipitously given me a career, a love of photography and an appreciation for the physical books, photographs and human relationships, which can be obfuscated by computer screens and Microfiche viewers. Oscar & Ben also inspired in me a love of sport and teamwork, which is only coming to the fore in the 36th year of my life. Debbie, Ben & Hannah inspired in me a love of writing, drawing and creativity that would normally have been stifiled by my move into a technical industry.

Design Museum Quote

The Werdmüller/Monas family's book of drawings by the children - Ben & Hannah - was one of the most precious objects I have ever had the priviledge of handling. Now my own mum looks after priceless manuscripts and first editions of every book ever printed, for the Bodleian Library, Oxford University. These connections are easy to overlook, if you hadn't lived 36 years in my shoes, which is understandable. We all have our own outlook. We are all independent and unique observers in the Universe.

Thanks to a great piece of writing by Ben, it dawned on me that what I do with my 'head start' in computing is often indistinguishable from magic for the vast majority of people, who are playing catch up. Ego and humility always duke it out in my brain, depending on whether I consider my own unique experiences and opportunities, or whether I compare myself to an 'average' set of experiences and opportunities.

So are ordinary people able to stay abreast of developments in theories pertaining to the fundamental nature of reality? Can a kid from a state comprehensive school read and understand the literature that is published in books and academic papers? The jury's out, but I can highly recommend J S Bell's Speakable and Unspeakable in Quantum Mechanics for anybody who would like to read about the probability of a Physics PhD's socks being of different colours.

In the interests of my own reputation... I don't think I've 'solved' or 'discovered' anything. Just a curious mind.

Quantum Eraser Experiment

Nick Grant repeating the classic "Quantum Eraser" interferometry experiment with a laser and polarising filter, at the Cavendish Laboratory, Cambridge, UK (July 2011)

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